Unite Against Scleroderma Event Scheduled For May 5th, 2013 PDF Print E-mail
Monday, 25 March 2013 21:46
Scleroderma is a rare, autoimmune, connective tissue disease characterized by the overproduction of collagen, which results in the thickening and hardening of the underlying connective tissues which support the skin, blood vessels, muscles, and internal organs such as the heart, lungs, and kidneys. It can limit a patient’s range of motion and ability to perform simple daily tasks due to fatigue, and the pain, swelling, and inflammation of the joints. With organ involvement, life can become particularly more challenging and life-threatening. There is no known cure for Scleroderma.

For our third year, the Scleroderma Care Foundation will be hosting its “Unite Against Scleroderma” Awareness Walk. Scheduled to start from 3:00pm, the Walk would be held on Sunday May 5th 2013 and cover one full lap around the Queen’s Park Savannah, Port of Spain. The Walk aims to raise the profile of Scleroderma in the public consciousness - aligned with our ongoing mission to assist Scleroderma patients, their families, and respective communities through mutual social and financial support, educational initiatives, the stimulation of research, and bringing forth a greater awareness of Scleroderma.

We would really like to encourage each of you to come out and join us on the day. Bring your family, children, co-workers and friends and walk with us on May 5th. T-shirts, Scleroderma silicone bands, and pins would also be on sale. All registered participants receive an event branded t-shirt as well.

Registration begins April 8st 2013, but you can download and fill out the registration forms today. Contributions for adults are $100 and for children 12 years and under, $50. For more information, please do call us at 756-3930 or 685-3213 or email us This e-mail address is being protected from spambots. You need JavaScript enabled to view it .

Click here to see some highlights from last year’s Walk, and join us on Facebook to continue the discussion and get further updates as we near the day. We do look forward to seeing you there.


 
More articles :

» NeoStem Awarded Grant To Develop New Treatment for Skin Wounds In Scleroderma

NeoStem, as a leader in the emerging cellular therapy industry, announced that it had received an award under the Small Business Innovative Research Program of $147,765 for the “Development of Adult Pluripotent Very Small Embryonic Like (VSEL)...

» Long-Term Outcomes of Scleroderma Renal Crisis

In a previous study. researchers sought to describe the medical history of a group of patients with Scleroderma Renal Crisis who had been treated with ACE inhibitors. The following is essentially a summary of that study, which was conducted by...

» UT Researchers At Forefront Of Efforts To Stem The Tide Of Autoimmune Diseases

Autoimmune and autoinflammatory diseases are on the rise and researchers and physicians at are at the forefront of efforts to stem the tide. These diseases are often hard to diagnose and often affect individuals differently.Autoimmune and...

» Treatment Tips for Lupus

Good self-care is essential to managing lupus (systemic lupus erythematosus, or SLE). Learn to recognize your body's warning signs of a flare. Warning signs may include increased fatigue, joint pain, rash, or fever. When you notice any of these...

» UC Davis Researchers Win Prestigious NIH Awards

The National Institutes of Health on Tuesday named three UC Davis researchers recipients of highly competitive awards designed to encourage innovative, high-risk research and accelerate the translation of science into improved health.Reflecting the...

» TLR4 Protein Implicated In The Fibrosis Associated With Scleroderma

An international multi-disciplinary research team led by scientists has uncovered a new role for the protein toll-like receptor 4 (TLR4) in the development of tissue fibrosis, or scarring.Recently reported in the , this finding has implications for...

Comments  

 
0 #2 adelwyn 2013-03-26 21:28
Definitely looking forward to seeing you all there on the day :-)
Report to administrator
 
 
+1 #1 Lael Samuel 2013-03-26 13:54
Consider me there by default! lol! :lol:
Report to administrator