U.S. Legislation Passed to Promote Research and Awareness of Scleroderma PDF Print E-mail
Saturday, 02 October 2010 00:50
The Scleroderma Foundation (U.S.) has applauded the U.S. House of Representatives for the passage of the Scleroderma Research and Awareness Act (H.R. 2408), introduced last March by Rep. Lois Capps (D-CA) and Rep. Vern Ehlers (R-MI). This bipartisan legislation gives hope to the estimated 300,000 Americans and their families living with this devastating disease.

The "Scleroderma Research and Awareness Act" will:
Direct the National Institutes of Health to intensify and coordinate activities relating to scleroderma, including:
  • Research on etiology and the development of new treatments.
  • Evaluate new treatments through clinical trials.
  • Research on the relationship between scleroderma and secondary conditions including: pulmonary hypertension, gastroparesis, Raynaud's phenomenon and Sjorgen's syndrome
  • Support for the training of new investigators
Direct the Centers for Disease Control and Prevention to establish a scleroderma public awareness campaign highlighting disease symptoms, prevalence, related conditions, and the importance of early diagnosis.

"The Scleroderma Foundation is proud to be in the forefront of advocating for greater research for this devastating disease," commented Joseph P. Camerino, Ph.D., Chair of the Foundation's National Board of Directors. "With the passage of this landmark legislation, the scleroderma community has even greater hope that a cure will be found."

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