| Children Get Scleroderma Too |
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| Monday, 30 November 2009 10:18 |
 Juvenile Scleroderma is a rare childhood condition characterized by fibrosis of the skin and internal organs. Clinical manifestations of childhood Scleroderma are different from adult disease and early recognition, correct classification and treatment can improve long-term outcome.There are two main forms of the disease: Localized Scleroderma and Systemic Sclerosis. Localized scleroderma is the most common form in children and mostly restricted to the skin. Juvenile diffuse systemic sclerosis is related to visceral involvement and cardiac disease which is the main cause of death in these patients. Juvenile diffuse systemic sclerosis has an incidence of about 0.05 /100000 and around 5 to 10% of all cases of Systemic Sclerosis evolve in childhood.In a previous multinational study, which included 750 patients with juvenile localized Scleroderma, the investigators noted that it was, "for the most part, a benign, self-limited condition with manifestations confined to the skin and/or subcutaneous tissues." Children who suffer from Juvenile Scleroderma may experience a variety of emotions. They may be confused by their illness, and angry they are sick, especially if their illness puts limits on their activities. When the future is uncertain they may become frustrated, worried, and/or depressed. The often visible changes in appearance may be particularly difficult for children to handle, since they may lead to teasing by other children and are a daily reminder of the illness. Parents need to talk openly with their children about Juvenile Scleroderma, and keep a watchful eye for signs of distress. Also, parents and children can become involved in a support network to exchange information and find emotional reassurance. For more information on Juvenile Scleroderma, we have gathered a couple useful resources around the internet, which can get you started.
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