Management PDF Print E-mail

Our Management Team or Executive Committee is presently responsible for the daily operations of the Scleroderma Care Foundation, realizing its vision, and similarly ensuring its growth and future success.

Adelwyn Holder, Scleroderma Care Foundation Founder and PresidentAdelwyn Holder, Co-Founder & President
Adelwyn Holder currently holds a BA (Hons.) in Business Management from the Anglia Ruskin University and is presently pursuing his post graduate degree, an MBA in Project Management from the Henley Business School. His start with the Scleroderma Care Foundation began as its President and Co-founder in 2008. This was several years after his own mother and other Co-founder, Susan Le Gendre was diagnosed with Scleroderma in 2004 and having recognized that there were other persons living with Scleroderma in Trinidad & Tobago lacking the necessary support needed to effectively cope with the disease.


Susan Le Gendre, Scleroderma Care Foundation Founder and Vice PresidentSusan Le Gendre, Co-Founder & Vice President
Susan Le Gendre is currently a retired Teacher having been employed for twenty three years with the Ministry of Education. Susan has also worked alongside teaching colleagues on Social and Cultural, Sports and Music Festival Committees. She retired from her Career in Teaching in 2003 after major surgery to the spine. In 2004 she was diagnosed with Diffuse Systemic Scleroderma. This diagnoses completely undermined life-long plans as she gradually experienced loss of independent functioning, needing assistance for some seemingly simple tasks. God’s love and her family became her source of inspiration and heightened her desire to fight for her life. Susan was instrumental in Co-founding the Scleroderma Care Foundation with Adelwyn.

 
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» Liver Autoantibodies in Patients with Scleroderma

Thelma L. Skare & Renato M. Nisihara & Osvaldo Haider & Pedro M. Azevedo & Shirley R. R. UtiyamaClin RheumatolDOI 10.1007/s10067-010-1586-0Association between autoimmune liver diseases and scleroderma has been described. The purpose...

» Pathogenesis and Therapeutic Approaches for Improved Topical Treatment in Localized Scleroderma and Systemic Sclerosis

I. Badea; M. Taylor; A. Rosenberg; M. FoldvariPosted: 09/03/2009; Rheumatology. 2009;48(3):213-221. © 2009 Oxford University PressSSc is a chronic progressive disorder of unknown aetiology characterized by excess synthesis and deposition of...

» What Is Autoimmune Hepatitis?

Autoimmune hepatitis is an of the caused by an autoimmune disorder. An autoimmune disorder is one in which a person's immune system attacks his or her own body for unknown reasons. The degree of liver inflammation can range from mild to deadly.The...

» Diagnosis, Management and Prevention of Scleroderma Renal Disease

Henry Penn; Christopher P. DentonPosted: 11/14/2008; Curr Opin Rheumatol. 2008;20(6):692-696. © 2008 Lippincott Williams & WilkinsPurpose of Review: Renal complications are important in scleroderma (systemic sclerosis) and include scleroderma...

» Dermatomyositis

Dermatomyositis is one of a group of muscle diseases known as the inflammatory myopathies, which are characterized by chronic muscle inflammation accompanied by muscle weakness. Dermatomyositis’ cardinal symptom is a skin rash that precedes or...

» Real-World Bosentan Therapy Successful in Pulmonary Arterial Hypertension: Presented at ATS

Real-life experiences in treating patients with pulmonary arterial hypertension with bosentan appears to provide similar efficacy as seen in clinical trials -- despite patients being somewhat older and having more scleroderma, researchers said today...